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1834 DEAF (deaf-mute | sourd-muet) banquets update June 28, 2011

Posted by Mike Gulliver in DEAF.
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Yes… it’s taken a few more days, but the next page of the 1834 translation is done.

You can view the ongoing work at http://www.scribd.com/doc/58447190/1834-Deaf-Mute-Sourd-Muet-Banquets-translation

 

Today in the Italian Parliament a bill is… May 24, 2011

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Today, in the Italian Parliament, a bill is being voted in that changes the status of Italian Sign Language from a full natural language, proven as such by years of accepted linguistic research, to a gestural system that doesn’t need any kind of recognition.

The fear of Italian (and other) DEAF people is that the change in legislative status will lead to a withdrawal of any kind of formal provision for the language (interpreting, schooling in sign etc.) now unmerited by an ‘idiom’.

I agree… and I’ve signed the British-based petition to support Italian Sign, and forwarded the Italian-based version to colleagues of mine who can sign it because they are Italian Nationals.

But what interests me too, is how anyone got enough leverage to get an MP there to present a bill that explicitly denies the validity of some 40 years of linguistic research.

Sure… there is a big CI lobby there (as everywhere) and it would be interesting to see what impact or influence they had… but isn’t this just symptomatic of the different spaces of knowledge that exist in and around the DEAF community? And the protests symptomatic of the fire-fighting that goes on when those different spaces meet?

The question for me is how to bring those spaces of knowledge together in a meaningful discourse before this kind of thing happens so that it doesn’t…

The national ‘forgiven’ summit… part 1 June 14, 2010

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Some people complain that Deafhood is unncessarily contestatory.

Why? Because they suggest that it plays on fear to establish an identity that isn’t ‘really real’… that it refuses to accept the modern day situation of the Deaf community… that it unnecessarily separates Deaf people from the wider hearing world.

That they do it in clearly written English (and Welsh) gives some indication as to the end of the Deaf language spectrum that they occupy…

I’ve even argued that Deafhood is problematically contestatory. But ‘unncessary’… No.

Why?

Because, without contestation – you have no recognition.

And without recognition – you have no rights.

And without rights – you have no way to get what you want on your terms… including the space to thrash out your identity with others who insist on being fuzzily associated with you for some reason…

This is something that Aboriginal People the world over have understood…

-

A few years ago, I was at a conference in Tasmania… A key part of that conference (on senses of place) was a welcome to the land, given by a representative of the remainder of the Aboriginal population of that state… remainder, because the Whites were so effective in ‘culling’ the Aborigines that there were few left alive and none that were pure-blood…

Key to the policy of the Whites at the time was to ‘remove any trace of the Aboriginal from the Aborigines’… anyone in doubt of the horror of how that policy was put into practice should watch ‘Rabbit proof fence’ for a easy starter…

Clearly the pain of that time is something that is still present – and something that I don’t wish to sweep under the carpet – However, at the time I was there, a seismic shift was going on in the attitudes of the Aboriginals, and many of the Whites…

In the welcome, the Aboriginal spokesman – Greg Lehman, a representative of the Trawulwuy people – said…

“In the beginning, when the Whites arrived, we just wanted to you to leave… Most of our history with you is about waiting for you to leave… Now, we realise that you’re not going to leave… and we realise that you shouldn’t. Once we were the Aboriginal people of Tasmania… now, the whites who live here are also the Aboriginal people of Tasmania…”

A shift of this type (forgiveness, reconciliation, recognition… call it what you may…  not resignation, it’s more positive than that) has been going on in other places too… the use by self-referencing Pekeha (Whites) of the twin names of Aotearoa New-Zealand is an example…

And now… in Canada. Take a look at what’s been recently going on with the National Forgiven Summit.

With Paddy Ladd and Sarah Batterbury, I’ve written on the parallels between the Aboriginal situation and the Deaf situation – on the direct comparison that is possible between the ways that people have tried to remove the Aboriginal from the Aboriginal… and the Deaf person from the deaf person…

So is it time, now, for Deaf people to simply ‘suck it up’ and forgive the Oralists as some would suggest they should do? Accept that a time of ‘postdeafness’ is coming, that they can’t avoid it, and that they should take up their place within a fuller designation of valid humanity?

I don’t think so…

I’ll unpick this in a couple of future posts… but there’s a key difference to the situation of Aboriginal peoples and the Deaf community and, however the former construct their identity (and it is constructed…) as somehow self-evidently distinct, important, valid in a way that forces non-Aboriginals to recognise it as they work towards establishing a situation of parity with them… At least Aboriginal people have that recognition…

Deaf people, on the other hand, have no recognition… They are still ultimately best served, in the eyes of the mainstream, by not being ‘Deaf’ at all…

The Aboriginal identity might be constructed… but it’s one construction within a world of identities where everything is constructed… and it’s a construction that has been built on their own term – that has allowed them to define themselves without looking over their shoulders all the time.

Until this is also available to Deaf people… then Deafhood should (and will, I think) remain contestatory.

Stretching informatics June 2, 2010

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My brother‘s been in touch… he works in informatics in Henley Business School. His particular interests are

  • Social informatics and collaborative systems – computer-supported cooperative work, community systems, social networks, human-computer interaction, information retrieval, data mining, business intelligence, media informatics.
  • Perceptual, Usability and Information Acquisition – Quantifying the perceptual impact of emerging technologies; human-centric data manipulation; eye-tracking and attentive displays, as well as intelligent systems and human-computer interaction.

All so much jargon?

OK… put it this way. At the moment… if you’re Deaf… all you get in terms of technology are things to ‘assist’ you in a predominently hearing world… things like vibrating pagers for fire alarms and flashing doorbells…

Imagine then if – instead of this – your predominently visual way of accessing information was simply another, equally valid way that wasn’t so much ‘catered for’ as simply ‘there’…

The significance of the shift is hard to make if you’ve not seen it in action… so here’s a taster from the world of architecture.

For the last three years, Hansel Bauman has been leading a project in Gallaudet, in the US, to define what a Deaf Archtecture might look like. The results of this are stunning… built spaces formed in the round rather than at angles, transparency and waist-high walls, inter-storey permeability, sign language-tailored walkways with no street furniture to bump into, polarising windows for privacy rather than doors… You can have a look at the blog that emerged here and at some of the feedback information in a magazine article here.

What’s key to this is allowing Deaf people to entirely re-imagine the role of the built environment in a way that originates within Dear people’s visual being-in-the-world as ‘People of the Eye’ (Veditz 1913), rather than taking a hearing-centred design and simply ‘adapting it’. ‘Deaf space’ as they’ve (somewhat confusingly) called it is not a ‘secondary’ space… but a space that is entirely valid… with a different point of origin.

So, what might this do to informatics if the same idea was applied? It’s hard isn’t it… we’re so used to text-oriented, linear-string information storage and retrieval… But imagine what the world of informatics might look like if it originated within the visual spaces of the Deaf community? A focus on visual communication quality?  Control interfaces that leave the hands free? Circular and multi-entangled information storage and retrieval? Multicast communications to a linguistically flexible audience? Semiotic rather than text bookmarking?

I can’t begin to imagine what it might be like… but I’m looking forward to finding out!

Viva voce October 12, 2009

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Interesting that although it’s called ‘viva voce’ [live voice] (and I admit that I did choose to speak), my viva was conducted in both speech and sign…  It makes me wonder whether we should look further down the list of definitions for voice… have a look at http://dictionary.reference.com/browse/voice for example… numbers 1-5 are typical, but these are more interesting.

6 – something likened to speech as conveying impressions to the mind

8 – the right to present and receive consideration of one’s desires or opinions

It’s rather like the re-work of ‘silence’ that I did a few years ago, where I defined silence not as a lack of sound, but as a lack of information presented in a form that can be perceived… ‘captured’… it’s interesting how well this links into Amartya Sen’s work on ‘Cap-abilities’… but that’s a post for another day.

Anyway, the viva went well… I’d like to thank Steve Emery and Mike Heffernan for the opportunity to discuss something that I’m passionate about for a whole three hours…  I am now Dr Gulliver (I’ve been reliably informed that I have the right to use it as soon as the decision is announced… and it’s proved to be remarkably useful in getting Mortgage Advisers  to take us seriously even though we have more-than-fragile incomes) and I begin the slow process of finding a full-time, long-term research position… not easy for a wide variety of reasons.

I’m currently working as a computer help-desker, with some additional research work at the Centre for Deaf Studies.

At the moment, a tenured lectureship seems a loooong way off.

Hmm December 5, 2008

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Yes, well… that commitment to keep this updated didn’t last long now did it!!

Still… quick note… more information and a paper uploaded to my profile on academia.edu site. The paper is pretty basic, a re-examination of Milan through a more spatial lens, but for those who haven’t read anything that I’ve written, it’s a start.

Second data chapter going to review today, so on to the third on Monday… article to review for Deaf Worlds later today and some fascinating thoughts on the distinction between deaf, Deaf and DEAF from a friend of mine at Bristol which I hope we we will be able to publish when we’ve had a chance to chew it through some more.

Also check out Annelies’ blog on her work on Ghana at naarengelandvaren.blogspot.com

Happy weekend.

Milan again? March 18, 2008

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Looking through the media coverage of the HFAE bill, have you noticed how much it mirrors the debates of the congress of Milan in 1880? In fact, it’s revealing how many of the assumptions undergirding the current proposal are the same… and frustrating that little impact seems to be made by challenging them.

Clause 14 (4) (9)

Persons or embryos that are known to have a gene, chromosome or mitochondrion abnormality
involving a significant risk that a person with the abnormality will have or develop -
(a) a serious physical or mental disability,
(b) a serious illness, or
(c) any other serious medical condition,
must not be preferred to those that are not known to have such an abnormality.”

That appears fairly clear to me. If you define deafness as a serious physical disability, and you can identity its cause within the genome as an abnormality… then those persons or embryos identified as having those genes or combinations of genes, will be excluded by law from donating eggs or sperm, and/or disregarded as viable embryos before implantation.

But it leaves me with more questions than answers.

1. Academic… What constitutes a serious disability? Where are its origins? What of D/deaf people’s well charted difficulty in locating themselves within a binary disabled/non-disabled model? What about disability studies’ location of the responsibility for dis-abling in the environment and society? What about Deaf people’s cultural/linguistic model? How about previous assumptions concerning the inherent inadequacy of Black people, Jews or Women? What about hearing people in Deaf-authored spaces?

2. Moral… Why does this Bill have a ‘corrective’ ingredient? How is it formulated? Who’s version of ‘better’ humanity is preferred? What happens as our morals change evolve in the future? Who gives the right to intervene to prevent an ‘abnormality’ being passed on?

3. Scientific… Can we guarantee the knowledge that we have on genetics? Do we know for certain that disabilities will result from specific genes or gene combinations? Does that information really inform our knowledge of who and what is ‘happier’ or ‘better’ or is ‘health’ just a question of genetic Sudoku played with no moral ingredient?

4. Legal… How does this stack up against human rights legislation? What facilities are there for legal challenge and accountability? Where does this sit within current abortion debates? (or those concerning differing ages for disabled births?)

5. Social… Do you stop here, or do you eradicate the ‘addiction gene’, or the ‘obesity gene’ or the ‘gay gene’, or (in our warming world) the ‘fair-skinned gene’? In a country where, last week, a girl was beaten to death because she looked different, what does this clause say about welcoming diversity and the disposability of those who are ‘other’? Will we see Deaf people travelling abroad to find reproductive freedom?

6. Epistemological… What about Deaf people’s take? What does their reality (realities) look like? Why is that being ignored? Why are Deaf people being subjectified into bodies by rather than empowered as people? Why is Deaf well-being being ignored?

All of these are serious areas that arise from this one clause, and all are areas that are shut down at a stroke by those who refuse the debate.

The HFAE bill threatens to destroy more than just embryos that it judges invalid… it threatens to destroy the ability to hear what Deaf people have to say.

A plea to the press on Clause 14 (HFAE Bill) March 12, 2008

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I know it sells papers… gets ratings… draws crowds… and there’s nothing better than a bloodfest to get the juices flowing… but this (highlights added)

Concepts of equality and parental choice sit uneasily when the result means deliberately creating a baby with a disability…” (Moral Maze)

and this

Unlike the couple who are currently fighting for the right to ensure they have a deaf child through IVF… ” (Daily Mail)

Is plain mis-representation.

The question is not a case of preferring a deaf embryo over a hearing one… It is simply a case of NOT aborting a fetus that is deaf, deselecting a gamete that might be deaf, or rejecting a donor who might carry a ‘deaf gene’.

Dear press… Can you not see the debate is not about Deaf people engineering-in deafness, but about those with some kind of authority based in public acceptance and submission deciding to reject human beings based solely on their ability to hear and on the disadvantages that they might inevitably ‘suffer’ living in a society that has consummately failed to understand them.

Dear press… you have been sucked in… and you’re playing their game… and you’re lending them the support upon which their fragile authority continues to thrive.

For 200 years and more, Deaf people have been fighting to try and explain themselves to those same authorities who have single-mindedly refused to allow Deaf people to present their point of view without being talked-over, interpreted, re-presented or explained away.

And now, as we watch, it is happening all over again… rather than entertain a challenge to what is considered normal, healthy, whole… and perhaps discover themselves prejudiced, bigoted and less than the liberals that they would wish to be they would rather silence opposition to their control of what is considered ‘normal’ by eradicating them at their point of origin (ironically, to save them from a terrible disability)… or silencing them and not allowing them to speak.

Please don’t play their game by granting them the moral high ground… please join in forcing them to explain themselves.

Who is it really playing God?

Response to John Humphries March 11, 2008

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I’ve been spurred back to writing by yesterday’s response to the Human Fertilisation and Embryology Bill by Tomato Lichy and Paula Garfield on Radios 2 and 4… and particularly by the responses from John Humphries who demonstrates perfectly the cross-purposes at which people are arguing.

The issue of Clause 14 is hotly debated elsewhere and I don’t want to add my voice to the mêlée… Rather, I’d like to suggest that the problem be considered on a different level… one that unfortunately gets swamped by the (very real) necessity for urgent political action, the lack of time available to opponents of a process that moves quickly and the pressure to achieve an end goal… but one that, in my view, warrants a move from the entire academic community to prevent an initiative that threatens to destroy our access to knowledges that differ from those of the temporarily approved set of ‘Truth’.

Humphries’ responses in the Radio 4 exchange with Tomato clearly demonstrate the problem. He cannot perceive of deafness being anything other than a disability… and sign language, or sign language-mediated knowledges, being anything other than a compensatory system for those who cannot hear… consequently, his perception of what might be the ‘right choice’ is limited to the one that appears ethnically inevitable.

Consequently, as Tomato (and Paula too in the exchange with Jeremy Vine) assert Deaf culture and language, the non-disablement of Deaf people, the dis-abling of hearing people in Deaf spaces and so on… it makes no impact on Humphries’ single-minded assumption that there is only one reality… his own.

I don’t want to argue epistemologies or ontologies etc. head on. It has no impact on people who are that stuck inside one knowledge system. So let’s start a different way, by embarking on a ‘make believe’.

In 2003, the British Government finally accepted the linguistic evidence that BSL is a language in its own right (note: they did not accept BSL as an official language of the UK, nor did the government in its entirely participate in the validation, only the department of work and pensions did… and only within the remit of disability provision… so there is a whole lot more work to do yet). By so doing, they accepted that BSL (and therefore other natural sign languages, that’s another debate) is fully able to mediate human linguistic and cognitive development.

Let’s dial back then to the point in time where humankind developed language. What if, at that point, instead of adopting speech, they had adopted the perfectly viable alternative: sign language. There’s evidence that some might have done, and indeed nothing within the language to stop it from happening, and there’s nothing inherent within the decision to make it any less viable or likely than the current status quo.

And it’s here that the problem lies. If we accept that this is a possible scenario (and we must given the evidence) then the ‘only-ness’ of the world in which we live is challenged. If it is entirely possible that the world might have developed based on sign language-mediated intervention, then neither spoken-language culture and society nor sign-mediated culture and society is inherently ‘better’ than the other… simply different… equally validly ‘other’… complimentary… distinctive of human creativity… maybe even prone to different creative expressions and holistic mediations of what it means to be ‘human’…

And this is what Deaf people argue. They do not merely equate their sign language with deafness. Presented not only as a language through which Deaf people find their full humanity, but as a full, other form of communication that embodies the body/world relationship far more holistically than does linear spoken language, Deaf people have suggested that their ‘other’ knowledges are a compliment to the hearing-authored world.

OK… I know there is the reality of history and the current situation to consider (but most of that is a ridiculous worry about Deaf people not being able to hear traffic and suchlike), and I know that the political situation of the Deaf community has made it less than easy to extricate emotion, argument, anger, resentment, reactionism and so on. But what would happen if instead of seeing this debate as one in which Deaf people are (mistakenly) accused of trying to deliberately disable their future children, we flipped the debate on its head and looked at the issue of Clause 14 as symbolic of ways of exploring and celebrating the variety of what we consider fully ‘human’ instead of attempting to wield a 200 year-old, paternalistic, scientifically-informed scalpel to distinguish between those considered valid and those who are not.

Not so long ago Black people were also considered inferior… and so were gay people… and so were Jews… and so were women… And yet by embracing their knowledges, knowledge itself has been transformed… How much more than could Deaf people bring to the sum of human knowledge if they were allowed to express themselves without immediate prejudice.

It is time, now, to embrace the challenge of Deaf people’s physical, cultural, perceptual, linguistic, ontological otherness.

All the eradication of Deaf people and Deaf knowledges achieves is the impoverishment of humanity as a whole.

Ten days to go… and counting :) August 21, 2007

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Dear all,

For those of you unaware of what’s going on in my life, I’m getting married on the 1st September to a lovely lady called Jo… To anyone in a similar situation… do it… don’t even hestitate (BTW… congratulations to Olivier who has just got engaged :) )… although you might want to talk to your intended about the time that it will add onto completing your PhD, particularly if you are limited in time and funding… which we are… but that’s another question.

So, this week is a final week of trying to get as much done on empirial chapter three as possible so that I can hand it in to Paddy, Yvonne and Robert and let them read it whilst we’re doing last-minute preparation and then enjoying a well earned holiday and sorting out the move into our new flat in Cardiff.

And, lo and behold, up pops an interesting question from the writing… which is what do you do when the Deaf community pretty much re-makes theory as it’s perceived by the rest of the academic world?

You see, Deaf people in their daily interactions are only partially reached by movements and discourses that colour the hearing world… Spaces and places, essentialism and anti-essentialism, phalocentrism, feminism, nationalism… all of these theories that are built based on hearing world events, discourses and discussions… on the way that the hearing world works. Instead, because Deaf people primarily live and move in a world of knowledge mediated by sign language and by visual information (not the same as writing… but that’s another question too)… they naturally respond to human and social behaviours to come up with entirely different shaped concepts. Porous and inclusive nationalism… holistic and necessary essentialism… person-based spaces… ‘placeless’ spaces…

I’m supervising an MSc thesis at the moment on the parallels between feminism and Deaf theory… and it’s very revealing to see the way that Deaf people’s thought simply explodes the boundaries of essentialism, becoming, biological determinism and so on in a way that is not with feminism… and is certainly not against feminism… but is simply Other to feminist theory that is, whether we like it or not, primarily still formulated as a challenge to dominant, phalocentric theory…

On the other hand Deaf theory, at least non-adversarial Deaf theory (theory that’s not challenging something like Oralism) is simply authored by Deaf people within the Deaf community… Consequently, it develops in its own direction and then surfaces fully formed to challenge hearing knowledges… Thus, for example, there is no need to challenge a fixed (but also constantly evolving) biological determinism, or becoming, or essentialism since all are in some way necessary to the evolution of the Deaf community… neither one, nor the other… but both at the time are enemies and friends at the same time.

Kat, who’s writing the thesis, and myself are hoping to publish some of this at a later date… However, dropping it into a tradition that is already pretty adversarial might not be enormously comfortable and it’ll be interesting to see what reaction it brings.

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